Useful Links

The Young Epilepsy website (formerly National Centre for Young People with Epilepsy, NCYPE). can help parents and families by providing information about epilepsy and signposting you to other sources of support.

Contact gives information and advice on a wide range of issues including welfare rights, education, short breaks, local services and local support. It produces a wide range of publications including newsletters, parent guides and research reports, helping parents and professionals to stay informed. It has an invaluable directory – a guide to medical conditions and disabilities with information on over 1000 conditions and each entry provides an overview of the condition with details of support groups where available.

Remap is a charity funded by voluntary contributions devoted to making life easier and more fulfilling for people with disabilities. We make purpose designed equipment sometimes as simple as a step box or transfer board, or more complex devices, but always designed for the individual. The equipment is provided free of charge.
Contact information is on our website http://www.remap.org.uk or locally at 01724843502

The Government site www.gov.uk has a section on caring for a disabled child. It includes such items as:

A short guide to people you may meet while your child is being looked after.
The support available for disabled children in education, health and everyday life.
Direct payments for a disabled child can be made to people with parental responsiblity for the child.
Extra things to think about when looking for chidcare for a disabled child.
Support groups for parents of disabled children.
Claiming Disability Living Allowance for a child.
What services you and your child are entitled to.

The Family Fund – www.familyfund.org.uk gives grants for things that make life easier and more enjoyable for the disabled child, young person and their family, such as washing machines, driving lessons, computers and holidays. The Fund is a registered charity, helping around 53,000 families on the lowest of incomes across the UK.

St Hugh’s Specialist College for Communication and Interaction is our secondary special school in North Lincolnshire. The majority of St. Luke’s Primary School pupils transfer there at the end of the primary phase of education. The two schools have very close links. The school caters for students between the ages of 11 years and 19 years of age who have a range of learning difficulties including moderate, severe learning difficulties, autism spectrum disorders, profound and complex needs and language and communication difficulties.

http://www.st-hughs.n-lincs.sch.uk/

The National Autistic Society website is very helpful. It provides information about a range of matters including the Autism Services Directory which is a comprehensive directory of UK services and support for people with an autism spectrum disorder, their families, and people who work with them.

http://www.autism.org.uk/

Mencap - www.mencap.org.uk works with people with a learning disability and their families and carers to change laws and services, challenge prejudice and directly support thousands of people to live their lives as they choose.